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For as common an ailment as “ lupus ” is, there are many who know nothing about it. This web author is no authority either, but systemic lupus erythematosus has had a profound effect on her life...
(“jump to Links ”)
In 1969, my mother, Violet, passed away after battling lupus for a long time. Luckily, she enjoyed- and truly enjoyed- a few years of remission between the time she was diagnosed and the years during which lupus stalked her again.
Mom was diagnosed when she was a young woman with two small daughters. During those early years, she suffered symptoms that are very common and now well recognised: photosensitivity, joint pain, profound fatigue, and more. She found it extremely difficult to play with or lift her children.
Our early memories of our mother are not of her being ill and tired, but of a brave, cheery Mommy who loved us and showed it always. She taught us gently how to help her keep the house tidy and be considerate of others, and, especially, to laugh at nearly everything.
I remember her teaching me to spell “systemic” and “disseminated” and “lupus erythematosis” at the kitchen table . She shared all her understanding of this bewildering disease. She never mentioned about any prognosis she'd been given.
After about two years of struggle at the onset, Violet found that she had somehow passed into a remission phase. She went back to University for a year to add a Teacher's Certificate to her B.A., bowled for exercise, and formed a bridge club. As well, Mom took piano lessons and urged me to do the same, and eventually we played duets! She taught elementary school and kept house, and found great joy in her family and friends. All of this must have given her strength; I know as a child I was unaware of the worry and suffering she would have experienced.
Mom fell obviously ill again in about 1965, and from then had a terrible struggle with lupus until it took her in November of 1969. I was fourteen years old, and she was fourty six.
Now that I have just had my fourty sixth birthday, I want to honour my mother with a web page. “ What a sign of the times! ”, she would have exclaimed. If I can bring one person a moment's distraction, pleasure, or help by searching for current information on this mysterious and devastating disease, I will think that my heart will feel lighter. Mom has been the angel on my shoulder for decades, now, and will never be forgotten by anyone who knew her.
Please email me to suggest an excellent site about Lupus, to share your thoughts or to report a problem with my pages.
Links:
Other People have worked hard to compile more links...
Every link leads to more information and great links on the subject of lupus.
| Some books about Lupus: click on image for more information | ||||||||
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